My lung disease has a luscious nickname of Lady Windermere’s Syndrome, thanks to folks who snatched the character from an Oscar Wilde play.
And the syndrome even has its own website.
This is the first time I’ve ventured onto the internet labyrinth to see what news and materials are available for lay publics.
I typically dig into the data for doctors and researchers, figuring the information is a bit more reliable.
Turns out the bacteria that’s carving highways through my lung tissue warrants support groups, fundraisers and, to my delight, jewelry.
I found a website dedicated to NTM: an acronym new to my vocabulary that stands for non-tuberculosis mycobacteria.
One of its fundraising ideas is a bracelet—called a bravelet—that bears the inscription:
Bravelets bracelets are made to help you be brave during tough times. Wear it proudly for yourself or for a loved one. Thanks for supporting!
I’m hardly wasting away like an Oscar Wilde damsel: I’m biking, writing, researching, lecturing and taking my medicine.
And soon I’ll be wearing jewelry.
Here’s the NTM website: https://www.ntminfo.org/
There is jewelry for just about every disease now. And a color.
Oh Man! Up-ended by my ego again!